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Oliver

Oliver
My therapy dog

Welcome to The MS Chronicles!

Thank you for visiting. This blog was created by me, Cristen Salter, for other MS patients and their families in order to help them and myself cope with and face this disease. All information that are not personal experiences are thoroughly researched and cites are created in link or reference form. If you have a burning desire to ask me a question, please do so at cristen.salter@gmail.com. Enjoy and I hope you glean comfort, education and room for compassion for all those who suffer from this disease.

Friday, March 14, 2014

Lessons I have learned from MS

Up until last year, I was sure I was a tough east coast girl who could defend and stand up for myself. I was faced with all kinds of adverse situations, judgements and other issues I was able to face on my own.
Nothing was as nerve wracking and infuriating as the entire 6 months I have spent with little support fighting my doctors.
It all started with my mother coming into town to see my doctors. I live in Colorado and she lives in Florida. She never showed interest before, in fact she ignored my MS all together. So I was excited she was coming to learn about my disease.
I have been on Copaxone since I was diagnosed in 2008. I have had no new lesions or exacerbations since then. I was fine where I was.
Mom and I spent most of her trip at the different docs I see. When I got to my neurologist she told me I needed to be on a more aggressive treatment. She recommended Tysabri. I cringed. Why did she want me to switch? Because they wanted me on the most aggressive treatment on the market.
I told her I would think about it.

Find out where my moment of pause to think took me in my next post.